Cappskids

Since we first found out that Leah had craniosynostosis, we have used several online resources to help us understand the condition, and the treatment that she would be facing. These include the wonderful Cranio Care Bears, which is a not for profit started by two moms of "cranio" kids who solicit donations of items that may be helpful for kids and their families during cranio surgery. We received a care package from Cranio Care Bears in the days before Leah's surgery, and the package included a prayer chain that we hung over her crib at CHOP, which appears in many of the hospital photos.

We also used the Cappskids.org website, which provides lots of easy-to-understand articles and videos about the condition, and its various forms. They publish stories of "cranio kids", which we found really helpful in knowing what to expect during surgery, and in the long term. They also publish a calendar each year which features photos of "cranio kids" on their "cranioversary." The calendar just came out today. Recognize anyone on the cover?