Our daughter Leah had distraction surgery for coronal craniosynostosis on October 21, 2013. Here's her story:
Thursday, November 21, 2013
A pause, or an end, to the turning
Tonight, Leah's distractor was finally too short to turn. David tried to attach the wrench but there was so little of the distractor left that he was pinching her skin when he tried to attach it. She was crying, and though he kept trying to make it connect so we could get at least one turn out of it, we ended up giving up before we could turn it at all. Leah was pretty upset by the whole thing...it wasn't fun for any of us! We emailed Dr. Taylor, and he suggested we stop turning and come to see him on Monday of next week. He said he would do an xray before he decided if he would try to turn it anymore. I assume that if he did want to continue to turn it further, it may need to be done with a different type of device, and hopefully with at least a topical anesthetic, if not something more. We have turned it 30.5 mm so far, and we were going for 20-30 mm in all, so it's reasonable to think we may be done. If only her forehead on the right side had come forward further, I would feel much better at this point.
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